Tuesday, June 28, 2011

More Primary's

We are yet again heading to SLC for more appointments. We are going to see Dr. Benedict "stroke specialist" have another EEG done, see Dr. Barkan "seizure specialist" and more blood work, and possibly schedule his angiogram. I hope Dr. Benedict can give us some answers. Brendan had a seizure last Monday and no warning signs and Chris was asleep so he had to try and wake dad up poor kid, I was out of town. He only seized for about 4 min. this time. We were instructed to increase his meds. He seems to be even more agitated and aggressive also clumsy. I hope we get some answers soon. I want my Brendy back. Having a tough time this week, but easier than some I'm sure. My heart aches for my sister, but she has shown me so much strength these last couple of weeks. I don't know how she does it she is so inspiring. I love you pickle.

Thursday, June 23, 2011

Trever, 3, lived life to the fullest

Trever Mykel Stevenson, of Howell passed away Thursday, June 16, 2011 at Mott’s Children’s Hospital in Ann Arbor Michigan. He put up a good fight in his short 3 ½ years of life of having an auto immune disease which lead him to needing two bone marrow transplants. He endured much pain from his transplants and still seemed to be able to have a smile and giggle for all. His mother and Trever had such a deep love and connection that all could see the love they shared. We are thankful for the community for their love and support with his bone marrow drive and benefit dinner that helped with expenses to be able to travel to see specialists in Seattle.  
He was so full of life you wouldn’t know he was sick unless he had to have his oxygen on because he didn’t miss a beat. Anyone he came in contact with was putty in his hands. He had such a way with people and he loved and lived to make people laugh and brighten their day. He always had his cheerful smile and wave to greet everyone he saw. With his many trips and visits to the hospital and doctors he has made an unforgettable imprint in the hearts of many nurses, doctors, and staff members. He will be greatly missed and never forgotten.  He may have been small in stature but he was a giant in spirit. His mother, Krystal was unable to work due to his serious illness and time it took to care for him. Now she is in need of work after she can cope and heal from his passing. Due to Trever’s illness there was not a life insurance company that would insure him. The family would like to receive donations in lieu of flowers to help with expenses and make a donation in memory of Trever to the hospital or the National Bone Marrow Organization. There has been an account set up at Chase bank where donations can be made out to the mother Krystal Stevenson.
The viewing will be held Wednesday June 22 from 1pm-8pm the service is Thursday June 23 at 11am. A website has been set up in memory of Trever at http://memoriesoftrever.blogspot.com Also a benefit dinner will be held on August 6th at the Eagles Club in Howell, for further details contact Nicki Jo Dragonov 810-623-3544.

Friday, June 10, 2011

Trever is in need of lots of prayers and a miracle

My 3 yr old Nephew, God bless him.
Now for my nephew Trever, I haven't posted about him in a while because he was doing ok. Well Tuesday he ended up getting a bacterial pneumonia which now has caused his mono to flare up and was rushed to ICU 3am this morning. They have put him in a drug induced coma, respirator and say it is in Gods hands now and are praying he will make it to Sunday.  Please please keep him in your prayers and my little sister as well they need all the love and support they can get.

The neurology team stopped by. They think that he may have a little lesion on his right side. So they are thinking they would like to do an angiagram to see if there is any blockage causing this or if there is a flow problem. So how they explained it to me was the veins in the brain are like a sprinkler system. You have a main hose that branches off into little sprinkler heads and sometimes dirt or debris get in there and block of a set of sprinkler heads and this will cause other sprinkler heads down the line from it not to receive flow causing that section to die and be damaged. Or there could be something constricting the main hose causing flow not to get to the end of the line on both sides and again the same end result. It is suspected that the main artery to the brain is being constricted and causing damage on both sides. They found something suspicious on the right side after having the EEG video and going back and looking at the MRI. The spot on the right side doesn't jump out at you like the left side. So we will be coming back in about 2 weeks to meet a stroke specialist and maybe doing that procedure. They suspect that the keppra is not working and may look into changing his meds. They did send us home with some rescue medicine called versed. We would only give it to him if his seizures last 5 minutes and after the medicine if he is still seizing after five more minutes then we would need to call ems. Scary to think about but at least we now have some meds to give him and a seizure action plan. 

Wednesday, June 8, 2011

So we made it and got him hooked up to the EEG and two hours later he had a pretty good size seizure 33 min. Scary but he has had worse hopefully we will get some answers. They got a good reading of his seizure which is good. The nurses said usually you wait ten days and still don't get any activity. So this is a blessing to have it happen so quickly. He is still out of it and really tired.

Monday, June 6, 2011

So we head to SLC on Wednesday for the EEG study. We are scheduled to stay for two days. It just depends on when he has an episode "seizure". Makes me nervous but hopefully it will give us some answers.