Tuesday, July 26, 2011

rough couple of months

So the summer is almost gone :( and we still don't have any answers as to why Bren had a stroke. The last 3 weeks have been tough he has had about 9 seizures. He has been doing ocupational therapy since May. We went to his appointment today and the therapist has noticed a pretty big decline in well everything. He has ordered speech and physical therapy to be added as well. He said he has noticed a difference in him in the last 4 weeks and he didn't see him in those first 2 weeks due to the holiday and an appointment at Primary's. He did have a CT and Another MRI/MRA done and said there is no change. The day after is when he started having all of his seizures. So it make's me wonder if there is one now.

Emmett has had a strike of bad luck he has had 2 freak accidents with screws in the last month. First one he fell on one and split his eyelid open and the second he stepped on one that was hiding in the grass and it went about an inch into his foot. So the ER is probably going to start asking questions next time ;)

Sage is excited to start school. She has been pretty good this summer minus the tormenting and pestering she likes to give her brothers. But I guess its just pay back. hehe. Look out boys don't mess with that girl.

Jordan has sure grown up. He is such a big help. When Chris is gone and I need help with B or any of the other kids he is good to step in where he is needed. He is such a handsome little guy. I can't believe he is going into 4th grade.

Tuesday, July 5, 2011

Ok so I am finally ready to sit down and write my frustrations. We went to SLC last week and again came home with no new news as to what is going on with my little guy. We did get told that he has a lot more abnormal activity on the left side of his brain and are now concerned and want to do cognative testing. So in other words they think he may be getting some brain damage and causing him to have some mental disabilities. I have noticed a huge change in him over the last couple of months and even more so since I was away. He seems to act like he is autistic/ocd/adhd rolled into one at times. It is very heart breaking to watch him go through this and I know it bothers him. It breaks my heart when he tells me he wishes he would've never seen the bright lights because he wants things to go back the way they were. I am having a really hard time lately trying to cope and deal with this, that is why it has taken me a while to update this. I am frustrated with Dr.'s and don't know what to do about it. I want answers and I want them yesterday. I have seen my little boy change so fast in the last couple of months that I almost don't even recognize him. He has gained 20lbs in the last 2 months which is a lot going from 52lbs to 70lbs and I keep getting told its a growth spurt. I have a hard time believing that! He has gone from being my little shadow always wanting to help with whatever I am doing to not listening, hitting, pinching, scratching, and being just plain mean. Every once in a while I will see glimpses of him peek through. We have no appointments scheduled and that makes life uneasy for me. I feel like I have hit a dead end and can't find my way out.
We am so thankful for all our family and friends for all the love and support that they have given us. We have had so many ask what they can do to help. That has meant so much just knowing you are there when we need you. We don't know what we can do and don't know what anyone else can do, but just pray for him. I am sorry this is so depressing I am trying to be positive I have had a rough month.