As
you all know Brendan and I recently came home from Cleveland Clinic
after being there for just over 2 months. I would like to say wow what
an amazing place. Cleveland Clinic has angels working for them. I would
like to go to a job interview and see the requirements. We have been to a
few hospitals and well some have had better food but the staff are by
far worth it. haha sorry CC but the food is awful. On the bright side
that is the only negative thing I have to say. You have given my little
boy his life back he has been seizure free since October 12th 2012!!!
We have made so many new friends along our journey and are so thankful
to have those experiences. It has humbled me so much and I will never
forget the many great things that these young children can do and go
through. They have such amazing spirits and strength. My heart aches for
many of the families we have met and beams for others in there
accomplishments. I remember when we were first at Shaker Rehab
Brendan started having such horrible pain in his head that he couldn't
sleep or eat and then to where he had no tears left he had no energy to
fight to stay in bed. The doctors and nurses were very concerned and
were about to send him back to main campus when they finally figured out
the problem. After a bag of fluid and some steroids he was a different
boy. We didn't have the extreme pain again. A couple of days passed and a
little boy a couple years younger had a similar surgery and was
experiencing similar symptoms and then my worst fear that I had for Bren
happened to him. He started seizing. I remember going into to my room
praying so hard for this family and tears in my eyes for nights to
follow. I Knew the pain that they must have been going through, but his
mother was so cheerful and happy even though her little boy was in so
much pain and they had no other options. He did have a couple of good
days and I will never forget when that little boy grabbed a hold of my
heart and took a piece of it. While walking with his mom while she
pushed him in his chair he looked up at me and asked if he could hold my
hand. Such a simple request but yet such an impact it has had on me it
brought tears to my eyes and I miss his soft cold little hand. After a
couple of weeks of not being able to help him they decided he would do
better at home and maybe try day hospital in a few weeks. He continued
to seize and not sleep very well at night and be so wiped out that the
doctors were concerned and advised the family to start preparing. When I
heard this I cried so hard for him and yet was so thankful for our
blessings. weeks went by and it was about 10 days before we were to go
home and he was in the hospital for a chair fitting and the excitement
came rushing out of him waving his little arm in excitement he reached
for my hand and pulled me down for his sweetest kiss on my cheek. He
held my hand tight and kept saying my name over and over. We both smiled
so hard I thought my cheeks were going to fall off. He is doing so much
better and the seizures have slowed and he is able to be up for most of
the day. I was so so happy! Brendan and I were able to go to Dinner
with them our last night there. What an amazing family He has 2 sisters
who are just as cute and sweet. Brendan of course liked them. He is also
a charmer. Those 2 boys could be brothers. I have many other stories of
other friends we met. So when I can see to type I will post more. Thanks for caring and all our prayers we love you all.
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