Thursday, April 28, 2011

Lupus Foundation of America

Lupus Foundation of America: "- Sent using Google Toolbar"
So I have posted this link because now the Dr. thinks it is lupus. I am not sure how I feel about it. I don't know a whole lot about it. The plan is to get more blood tests done and then off to Primary Children's next week. So at least we are getting closer to some answers and knowing what we are in for. We went and some of his blood drawn tonight and he is going back in the morning for a glucose test due to the fact that he has gained 10lbs in a week. Crazy because he isn't on steroids or any other kind of meds that would make him gain weight. I guess if it is lupus it is a mild case because usually children are so sick and have been so sick for a long time before getting the right diagnosis. So it is a blessing that we had these things happen to him. They are thinking that he had a stroke and his hand will be affected permanently and he is at risk for having strokes in the future. The Dr. said it is kind of crazy to say it is mild where he has been having strokes and seizures but it could be a lot worse. So I guess I am thankful for that. As of now I guess I don't know how I feel its like a dream and is not really happening. So maybe in the next few days I may have a break down again. It seems to take about 3 or 4 days before it hits me. Which is good because Chris has a hard time at first and is somewhat coping by the time I have my breakdown.

1 comment:

  1. Hey lady.. I saw a post on your page to your blog. I am so sorry to hear what is going on with your sweet little guy! Your family will be in our prayers!